I
pull violently out from a dream: Someone is smothering me, a pillow
stifles my airway. But there’s no pillow covering my face. I
sit up, try to catch a breath. I can’t. Barely enough air
passes through to my hungry lungs. I will myself to fully waken and
open my mouth wide to take in a big, deep stream of air, then
another, and again another. Air gets through, sweet air fills my
lungs; I rejoice. I tell myself: this is an aberration, an unusual
occurrence, a nightmare, nothing to worry about. We are, after all,
in the year of the new millennium; Y2K has come and gone with none of
the apocalyptic doom. A conspiracy theory was all it was.
I’m
fifty-two years old; something’s not quite right with me. I’ve
swum only two laps, and I’m already gasping as I push forward,
stroke by labored stroke, toward the end of the pool. It looks so far
away. When I reach the end, I rest awhile, gulping big mouthfuls of
air.
I
look for workarounds. I try different swimming techniques, hoping to
increase air flow. I move my head to the right and throw a big breath
out. That helps. Or is that just an illusion or hope? Then something
else: I vary my stroke. It works, sometimes, but not every time. Slow
down a bit. Even so, my heart pounds heavily, my breath becomes more
labored, I swallow water. I just don’t want to have to stop. I
am determined to swim my habitual number of laps. Nevertheless, I
must stop. I can’t go on. So I climb out of the pool and head
for the showers. Maybe it was just lack of a good night’s
sleep? Yes, that’s what it was. Tomorrow will be better.
A
week later I have another nightmare, much like the first. Then a few
more, but less
severe.
I’m better now at waking myself up earlier in the distress.
I’ll keep a diary of these incidents.
And
then I don’t.
How
difficult it is to decide whether a symptom is serious enough to seek
a remedy or if it’s just part of the natural aging process!
Little aches, itches, fatigue, rashes, bouts of insomnia—these
could all be a part of living, or they could indicate some more
serious, unwanted condition. Every new discomfort that arises is like
a bird at your window: it gives a little chirp, testing the ledge,
unsure of its footing, then flies off. Next time the bird comes
along, enough time has gone by so that you’ve nearly forgotten
it had perched there before. After some initial wavering, it stands
firmly on the ledge announcing its reappearance with loud, confident
chirps until you acknowledge it and say, “Yes, I know you are
here, I can feel your presence. You look somewhat familiar although I
can’t place you. Fly away, bird.” And it does. But the
next time it arrives, you know something’s up. Its chirps are
louder, its footing is firm, its persistence stronger, its stay
longer. And after it goes away, you stand at the window looking for
the bird’s next arrival, wondering how much strength it will
have accumulated during its absence.
I
rifle through the medical literature in print. Too obscure and
inconclusive for my comprehension. I turn to more simple, online
accessible health and wellness sources. My Google search for
“shortness of breath” gets lots of hits. Among possible
causes, I decide that my nose is stopped up. The furnace-heated air
is drying out my nasal passages, causing blockages. I buy a
humidifier, leave it on all day and all night long. “I think
it’s helping…some,” I tell my husband, Paul. I
give it a few weeks. But nothing changes, it’s something other
than dry air.
Back
to the research. In the incomprehensible medical literature, I find
technical explanations, pictures, and diagrams. I want an easy
answer. I turn to Google again. Asthma comes up. I settle on that
condition as the culprit, focusing on symptoms that match—difficulty
breathing, trouble sleeping, weakness, tiredness—and ignore the
ones that don’t. I am warned that not everyone has all the
symptoms, nor the same symptoms, at all times. That covers it.
Am
I sure about my self-diagnosis? By this time, I’ve become
accustomed to my new way of labored breathing. It becomes ordinary,
almost. I’ll mention my suspected asthma condition to my doctor
next time I see him. He’ll be proud of me for having done my
research and educating myself.
By
the time my annual physical comes up in January 2001, I am used to my
new normal. I’ve become accustomed to waking before the onset
of nighttime bouts and so I almost forget about them. I focus on
wanting to please my doctor and showing how healthy I am—why is
that? I want to believe there’s nothing wrong with me. I want
to dismiss my breathing episodes. I don’t want him to think I’m
a hypochondriac. He checks my heart with his stethoscope. He checks
again. There’s an alarmed look on his face.
“Your
pulse is low,” he tells me.
“I
know, but that’s not new. You know I tend to have a low heart
rate.”
“Yes,
Vivian, but this is dangerously low; below forty beats per minute.”
I
admit to my breathing difficulties and tell him my research points to
asthma.
But
I can tell he doesn’t agree with my self-diagnosis. He orders
tests: echocardiogram, electrocardiogram, and a Holter monitor. I
wear the Holter to measure my heartbeat over a period of days. It’s
a heavy device, the size of my old Walkman. I carry it 24/7 for four
days like a crossbody purse.
Sinus
bradycardia is the diagnosis: My heart rate is slower than normal. My
self-diagnosis conclusions were not even close. The sinus node—the
heart’s natural pacemaker—is lazy, not doing its job well
enough to generate the electrical impulse to activate the heart. The
results show that my heart rate goes down as low as twenty beats per
minute at night. No wonder I can’t breathe.
Later
that January, I am scheduled for a pacemaker implant. Just an
overnight hospital stay, nothing major. No general anesthesia, just a
local and a relaxant. Still, it’s hard to relax. If I’m
awake, will I look into the surgeon’s eyes for some sign of a
situation gone awry? What if the anesthesia is not potent enough, or
didn’t penetrate thoroughly?
During
the procedure, I feel pushing on my chest, and move in and out of
sleep. When I fully awaken from the surgery, back in the hospital
room, I take a breath. And another, and another. How easy it is! How
deeply the air penetrates, no obstructions to delay the rush of fresh
air filling my body. Is it supposed to feel this good? I indulge in
deep breathing until I feel giddy. All this time, I have been missing
out. It’s like night and day. A happy Bionic Woman am I.
But
what do I think about this new version of me, now dependent upon an
alien, bionic implant to power a primary and essential organ whose
accurate functioning is needed for life? Am I now living an
artificial life? Maybe I should wear a protective aluminum shield so
as to block harmful signals sent by malicious entities to throw off
my pacing. My mind reels with philosophical and even theological
thoughts. Am I fully human? What does it mean to be alive? Is this
device my fountain of youth? What if I’m on my deathbed, the
pacemaker chugging along, single-mindedly intent on prolonging a life
I no longer desire nor deserve? A mere mortal should not—I, the
declared agnostic believe—artificially extend a predetermined
life span. I’m fooling with destiny. “It’s not
nice to fool with Mother Nature,” chimes the Chiffon
margarine commercial.
Yet,
I feel thankful and lucky for the science and technology that keeps
me alive.
My
cardiologist tells me, “Don’t go near Hoover Dam, don’t
have an MRI, don’t hold a cell phone closer than six inches to
the heart, and do not operate a jack hammer. You can pass through
airport and library security systems quickly, but don’t
linger.” O.k., I get it. Electromagnetic fields can throw my
pacemaker out of whack.
But
when I board BART on my commute home, the car is jam-packed with
people holding their cellphones at my heart level. I shield my chest
from invisible rays with my purse, my book, whatever I’m
carrying. That makes me feel better but, am I safe? I vow never to
board a crowded car again.
Pacemakers
have been around for a long time. The technology has evolved
considerably since Arne Larsson received the first implantable
pacemaker in 1958. Today, a pacemaker’s size is about 1½
inches long, its battery lasting six to ten years. Remote monitoring
units transmit data from the device to one’s doctor. Over three
million people worldwide have implanted cardiac pacemakers. Although
new to me, they are well-established in the world’s history.
As
years pass, I acclimate to my bionic life. I become protective of my
device. It gives me life. It has become a friendly companion to my
body; I don’t even feel its presence.
Yet,
over time a familiar sight, the little bird, approaches. I close the
window. My pacemaker cannot malfunction. It’s all in my
imagination. Nevertheless, I am highly attuned to changes in my
breath. In my late 60s, I begin to feel winded with exercise at times
when I didn’t before. Climbing stairs and swimming leave me
exhausted rather than exhilarated.
I
wonder, has my vigilance become hypochondria? The little bird returns
and stays too long on my window ledge.
“Does
the pacemaker record show any incidents since you last checked?”
I ask the technician reviewing the pacemaker data since the last
six-month checkup.
“Yes,
there are a few.”
I
look at the screen of the specialized computer he uses to communicate
with my pacemaker. The technician, with the cardiologist’s
assistant’s approval, turns a computer dial slightly clockwise
and slides a track bar to the next notch. One setting adjusts the
heart rate by sensing the level of body movement, the other adjusts
the timing of the heart’s contractions.
“Try
that,” he says, “and let us know if you feel a
difference.”
And
I do feel a happy difference.
I’m
now seventy-four years old and have been living with my bionic device
for twenty-two years. “How about that,” I say to myself,
“twenty-two years of borrowed life.” My device works, it
keeps me going, it keeps me active. I’ve—or rather, my
heart has—come to depend on it more and more over the years. It
seems my old heart is getting weaker with age and pooping out. But my
bionic machine won’t let it. Yet.
Since
that first time, my pacemaker has been adjusted a few more times to
increase its sensitivity to my body’s need for faster pacing.
Even so, again my heart feels like it’s about to explode after
swimming a few laps. Sure, I get out of breath, but it’s not
the same as being winded after a good workout. My little bird and I
are becoming regular companions now: It comes, stays a while, then
flies away.
I’m
currently on my third pacemaker replacement, each a newer version of
the last. And I now have an
automatic, in-home monitoring system that sends data from my device
remotely over the Internet to my cardiologist, Dr. K. And so now, how
do I feel about that? My mind races through scenarios and settles on
one: a malicious hacker penetrates my device and changes all its
well-calibrated settings. By severing its remote monitoring
capability, Dr. K. receives no alarm signal. Two decades later, a
Y2K-like disaster falls on me.
No
one has hacked my life-sustaining bionic device. Yet.
The
little bird returned eight months ago on a bright morning in 2023 and
persisted. It chirped loudly while I swam, but not when I was hiking
or climbing hills. True, those activities exhausted me: My breath
struggled, my muscles protested, but my heart felt like it was pacing
along, keeping up as required. I felt cheated. I couldn't silence
that bird while swimming.
Dr.
K. had my pacemaker adjusted, again. The next day, I swam with ease
and faster too. I was on a roll. Until a few months ago. So, I
pondered, am I supposed to have it adjusted again, and thereafter
every six months? How many adjustments are possible? How close am I
to reaching the bionic device’s capabilities? And why do I feel
this need for faster pacing only when swimming?
My
yearly cardiologist appointment scheduled in November 2024 arrives.
He reviews the data. All is well. The pacemaker’s historical
record shows no abnormalities, but it does show, to Dr. K’s
delight, that I’ve been keeping active. Physical activity, he
says, is one of the best ways to attain a healthy heart and lungs.
Dr. K. then speculates that when swimming, unlike other physical
activities, the breath is even and steady. Movements are smooth as
the water-buoyed body glides along. Therefore, the device’s
sensors may not detect the exertion as easily and thus don’t
prompt the pacemaker to send the electrical signal for the heart to
ramp up pacing. And so I, when swimming, suffer the consequences.
O.K.
I’ll trick it into action. I’ll breathe hard and fast and
I’ll flail my arms and legs to kick start my sleepy device into
life. Or, if I want to continue swimming—and I do—I will
just come to terms with slower swims. My former 35-minute swim now
takes 50 minutes. No matter what, I’m determined to keep
swimming until the device can’t tolerate more tricks or
adjustments. Bionic or not, the pacemaker’s intelligence does
not quite match mine. Yet.
I
wait at my window for the little bird. I know it’ll come; I
expect it to do so. And when it does, I’ll tell it, “Let’s
be friends. You tell me by the insistence of your chirps when I
should take caution, and when I should just get out of the pool. I
will heed your advice. You and my bionic device keep me alive. I
thank you both.”
Arne
Larsson’s first pacemaker failed within three hours of
implantation and the second lasted one week. Until his death at 86
due to unrelated causes, Larsson had twenty-six pacemaker
replacements. I’m fortunate; I’m no test case. I’ve
learned to trust my bionic device yet listen and heed to my body’s
commands.
I
have been writing personal essays, memoir pieces, and short fiction
since 2010, when I retired from a long career in librarianship. My
work has won awards and recognition and some of my stories and memoir
pieces have been published in journals and anthologies. For
example, my piece, “Turning,” won First
Prize/Best of Show, for Personal Essays at the 2018 San Mateo County
Fair, California. “Sacrificing Sleep for a Night Out” was
published in the online journal Next
Avenue on February 24, 2020. A couple of other essays were
published in local anthologies and others recognized in literary
contests.My
memoir, Living
in Two Worlds, was self-published in 2022.